![]() ![]() The legal interests of others, however, can threaten researchers’ promises of confidentiality if they seek access to the data through subpoena. 2 These promises of confidentiality typically include a promise to restrict access to the data and not to publish individually identifying information. In these and numerous other contexts, 1 researchers recognize they have a duty to maintain the confidentiality of the data they collect and typically make promises, which are documented in a consent form. Without people’s willingness to share information about their sexuality, sexual behaviors, and drug-using behaviors, we would not have discovered how HIV spread and effective ways to prevent it. For example, developing effective drug treatment programs requires understanding how, when, and why people use and obtain drugs. Researchers often require and collect sensitive information about individuals to answer important scientific questions that impact individual health and well-being, and the public health. Based on our analysis, we conclude with recommendations for how to strengthen protection of sensitive research data. ![]() We also analyze other statutes that protect research data to compare them to the Certificate’s protections, and we review other legal strategies available for protecting research data. In this article, we address those questions through a careful examination of the legislation and regulations concerning Certificates and the reported and unreported cases we have identified through our legal research and interviews with legal counsel about their experiences with Certificates. However, questions persist in the research community about the strength of Certificate protections, and the evidence on which to judge the strength is scant. Certificates of Confidentiality (Certificates), authorized by federal statute, are an important tool for protecting individually identifiable sensitive research data from compelled disclosure. The legal interests of others, however, can threaten researchers’ promises of confidentiality, if they seek access to the data through subpoena. Researchers recognize they have a duty to maintain the confidentiality of the data they collect and typically make promises, which are documented in the consent form. ![]() Researchers often require and collect sensitive information about individuals to answer important scientific questions that impact individual health and well-being and the public health. ![]()
0 Comments
Leave a Reply. |
AuthorWrite something about yourself. No need to be fancy, just an overview. ArchivesCategories |